Answer ALS is deeply alarmed and disappointed by Congress’ passage of the Full-Year Continuing Appropriations Act, which includes devastating cuts to ALS research funding. For years, funding for ALS research has grown steadily thanks to bipartisan support and the tireless efforts of the ALS community. These hard-fought increases have fueled groundbreaking progress in understanding ALS,…
Integrated data sharing platforms to accelerate research into ALS and Alzheimer’s disease by providing access to collaborative tools and datasets
Unprecedented resource, created with Cedars-Sinai, to accelerate ALS research and drive development of targeted therapies globally
The ALS Therapy Development Institute (ALS TDI), Answer ALS, and Microsoft are pleased to announce a collaboration that will bring together the two largest existing clinical and omics data sets relating to ALS. Through this partnership, comprehensive data collected through ALS TDI’s ALS Research Collaborative (ARC) will be added to Neuromine, an innovative data portal…
Dr. Jeffrey Keller to Co-Lead Answer ALS’ Unprecedented Open Access ALS Data Repository. Appointment to Answer ALS bridges revolutionary data repository with renowned biomedical research center. NEW ORLEANS, Louisiana—Answer ALS is excited to announce that Dr. Jeffrey Keller, Ph.D. has been selected as Answer ALS’ Principal Investigator over the program’s renowned open-access data repository, Neuromine….
10 Years of Commitments Met. Ten years ago, Answer ALS didn’t have a name, but the plan was developed to empower researchers around the world to help bring an end to ALS. In the video below, created when the program first began, every commitment made has been or is being met. Through a massive coordination…
Our 2022 4th quarter newsletter is available here. There has been a lot to celebrate, but there is so much more work to do. Please read about what the researchers supporting and utilizing Answer ALS samples and data have been working on to bring an end to the disease. https://conta.cc/3X0cjgZ
ALS Motor Neurons Differ by Sex, Study Finds. A new Cedars-Sinai study in collaboration with the University of California, Irvine (UCI) and the Answer ALS consortium has examined the expression of thousands of genes in stem cell-generated motor neurons that are known to die in patients with ALS. The study, published in the peer-reviewed journal…
Answer ALS is excited to announce Danielle Boyce, DPA, MPH as the new Executive Director for Answer ALS Research, coupled with her roles as Executive Director for the Packard Center, and Assistant Professor of Neurology at Johns Hopkins. Danielle brings 20-years of experience as a researcher, patient advocate, public speaker and author. “Danielle is a…
A new set of rich Answer ALS project data is now available through the Answer ALS Data Portal NEW ORLEANS, October 21, 2021 (Newswire.com) – A new set of Answer ALS project data is now available through the Answer ALS Data Portal. This data release is another milestone reaching 63% of the total estimated 150 TB…
In honor of Lou Gehrig’s Day on June 2nd and of Gehrig’s famous speech on July 4th, we will draw one name to be given a Lou Gehrig signed baseball. For every $50 donated at the link below, you will be entered once. If you are able to donate $100 or $200, you will be…
NEW ORLEANS, January 8, 2021 (Newswire.com) – Answer ALS, in cooperation with the Stephen Hawking Foundation, launches “The Data is Here” campaign on January 8 and on what would have been the famed Theoretical Physicist’s 79th birthday. The campaign features a video tribute to Stephen Hawking and his tireless efforts to solve complex universal questions, while living…
Data & TechnologyHarnessing Big Data with Advanced Analytics Neuromine is one of the world’s most robust and comprehensive ALS data resources, integrating multi-omics, clinical, and cellular datasets, while also linking to coordinating iPSC lines, biosamples, and other large-scale data platforms with analytic tools to maximize discovery and collaboration.
Multi-Omnics AnalysisComprehensive Biological Data Integration Making a comprehensive multi-omics datasets available that integrates genomics, transcriptomics, proteomics, epigenomics, and iPSC-derived motor neuron data that is freely accessible for analysis.
IPS Cells & Motor NeuronsGenerated 1,000 Participant-Derived Cell Lines Learn More about how to access 1,000 iPSC lines through our partners at the Cedars-Sinai Biomanufacturing Center
Clinic & enrollmentLeading Clinics Engaged to Complete Enrollment Enrollment in the Answer ALS program is complete, but you can Learn More about connected programs like Champion Insights, ALS Therapy Development’s ARC Program
