Answer ALS is seeking people over the age of 18 who have been diagnosed with ALS and related Motor Neuron Diseases to participate in a smartphone Companion App research study. Healthy people can also participate to be used as controls. The goal of this study is to determine if the tasks within the Companion App can be used to help track disease progression, while not in a clinic setting. As part of this research study, participants will create voice recordings on a weekly basis, as well as complete a monthly questionnaire.
Here is an instructional video on how to use the App once enrolled:
If you are interested and would like to enroll, please visit: https://redcap.link/ALSCOMPANIONAPP
Or, for questions or if you have any issues or concerns, please contact:
Sr. Research Supervisor, Johns Hopkins University
Principal Investigator: Jeffrey Rothstein, MD, Ph.D. IRB00240000
Enroll to Help Us Answer ALS